Feeds:
Posts
Comments

Posts Tagged ‘stem cell treatments’

For the past few years, as our schedules have wound down and our weekends are not spent on our children’s athletic events and other activities, I have found myself watching more football games than ever before. Sundays have become more relaxing, and I enjoy watching either the Jets or Giants (no boo’s please!). Even though I sometimes question how the game is played and the number of injuries sustained, I do like to watch.

Since this week is leading up to the Super Bowl, I was curious about the sports reports I hear detailing various activities for the week. So I went online to check them out: Media Day, Legends for Charity Dinner, Super Bowl Breakfast, Luncheons and a Super Saturday of Service. Wow, it almost seems like THE GAME is lost in all of the other events!

But this got me thinking about such a BIG event. When the Super Bowl comes to New Jersey – YES, NEW JERSEY, not New York one year from now in 2014, wouldn’t it be great if the focus of all these “extras” could highlight the need for care, treatment, cure and quality of life for people with spinal cord injuries and paralysis from neurological conditions like MS, brain injuries and strokes?? Wouldn’t that be SUPER cool??? Come on, people, how do we make this happen??

New Jersey is home to the Jets AND the Giants and their passionate fans; Dr. Wise Young, a prominent international researcher for SCI cure is based at Rutgers University; Kessler Institute, a Model SCI Center, in West Orange;  Kessler Foundation who focuses on employment opportunities for people with disabilities (and so much more!); The Christopher and Dana Reeve Foundation which provides comprehensive resources & funding for everything related to SCI and paralysis, and of course, yours truly – Push to Walk!

Together, I think we should all get on board and petition the NFL to consider SCI and paralysis a major focal point for the 2014 Super Bowl. Anyone in???

Game on! Enjoy the excitement! Cynthia

Advertisements

Read Full Post »

Happy Friday Everyone!

Riding my exercise bike this morning, I was watching the news as usual and was so happy to see a story about a flash mob that gathered in a store parking lot to collect money for a family in need. It just spoke volumes about how generous people really are, and how collectively, we can all make a difference to others. Reminds me of the old favorite “It’s a Wonderful Life,” which I watched for the very first time just last year! I loved that story – who doesn’t?

So along those lines of spreading the Christmas spirit and being thankful for all those who have helped me, my family and Push to Walk, I would now like to mention other people and organizations who are near and dear to my heart and share how thankful I am to them:

Bob Parker and NewBridge (www.newbridge.org), a local non profit which helps bring balance to people’s lives through counseling, housing and education for children, adults and seniors. Besides having my own ties to them for many, many years, their nurse and social worker helped my Mother and provided some much needed services when she was living alone.

Unite 2 Fight Paralysis, a new favorite since being immersed in the world of spinal cord injury, is a wonderful group of people dedicated to uniting and empowering the international spinal cord injury community to cure paralysis through advocacy, education and support for research. Marilyn Smith and her team have worked tirelessly to make progress in all of these areas and continues to provide a voice for all of us in search of a cure. Thank you! (www.u2fp.org)

Another favorite local non profit is the Community Soup Kitchen (www.cskmorristown.org) who provides nutritious meals in a warm, safe, and caring environment, free of charge, no questions asked along with assistance in accessing community resources, services, and educational programs. Carol Kennedy has been involved with this organization for many years and they meet an ever increasing need for these types of services.

Some SCI favorite resources: The Kessler Foundation, The Christopher and Dana Reeve Foundation, SCI Sucks, Spinalpedia and  FacingDisability.com. Check out these links and take advantage of the information and services they provide. Perhaps they will become some of your favorites in the future!

Enjoy the weekend, and I hope you look forward to the holidays with as much love and joy in your hearts as I do!

Cynthia

Read Full Post »

Thanks to the entire group at Unite 2 Fight Paralysis headed up by Marilyn Smith and the Working 2 Walk conference that was held in Irvine, California at the beginning of November. Our Push to Walk trainer, Tommy Sutor, attended the conference and was very excited to hear about the research that is going on from many different scientists. He came back with a ton of information to share, and has been telling us what he learned. So many exciting things going on!

One of the most important areas of the conference involved advocacy  and how people with spinal cord injuries need to join together and fight for a cure. While the areas of maintaining and improving health and wellness are important (very important, in my opinion if people want to be ready for a cure), the focus seemed to be on making advocating for a cure a priority now more than ever. Several people spoke about the current efforts and what individuals can do to contribute to the cause. As with most areas of concern, banding together and working in a unified group is sure to have more positive results than working separately and independently.

Please check the following links to learn more about what went on at the Working 2 Walk conference. Sorry I couldn’t be there this year – Hurricane Sandy derailed my plans (along with many others I am sure), but I look forward to attending next year in Boston. And since it will be back on the east coast, I look forward to more staff members attending as well. Thank you, Marilyn, for your hard work!

Check these links for more info:

http://working2walk2012.wordpress.com/2012/

http://www.u2fp.org/

Cynthia

Read Full Post »

Hello Everyone!

I am very excited that our Push to Walk trainer Tommy, my daughter Arianne (newly graduated as a DPT – Doctorate of Physical Therapy) and I will be attending this year’s Working 2 Walk conference in Irvine, CA. Marilyn Smith and the Unite 2 Fight Paralysis team does an awesome job of bringing together the best and brightest in the field of spinal cord injury research to update consumers and professionals on the current status of progress being made.

I attended the two previous conferences in Phoenix and Maryland, and am very happy to be going again this year. In addition to hearing speakers that include Jerry Silver, Frank Reynolds and Dr. Oswald Steward, I love connecting with friends around the country and meeting new friends, all of whom are involved in the SCI community.

The conference will conclude with a tour of the Reeve-Irvine Research Center, which is sure to be exciting and informative! Tommy is especially interested in all things related to research and SCI, so this is sure to be a highlight of the trip.

Check out the website for the conference (www.working2walk.org), and follow the Care Cure posts that usually keep track of all the conference happenings (http://sci.rutgers.edu). I’ll give you a summary when we return.

Cynthia

Read Full Post »

Boyd Melson, representing Team Fight to Walk, will be boxing at Roseland Ballroom on Thursday, August 2. Boyd donates 100% of all winnings in the ring to Dr. Wise Young who is working tirelessly to bring clinical trials for spinal cord injuries to the U.S. You can order tickets for the fight here: www.teamfighttowalk.com. Come out and support a true champion for SCI, one who is literally fighting for all those with spinal cord injuries.

In support of Dr. Wise Young’s work, a few videos have been released by Boyd and his Team Fight to Walk Co-Founder, Christan Zaccagnino. Check them out here: http://www.youtube.com/watch?v=fSS7fuJa61U&feature=youtube_gdata_player and also: http://www.youtube.com/watch?v=0HeuxO6VJFY&feature=relmfu. These relay their message much better than I ever could!

Support Boyd, support Just a Dollar Please (www.justadollarplease.org) and support the quest for a cure for spinal cord injuries! We ARE all in this together!

Cynthia

 

.

 

Read Full Post »

To build upon the information in my last post (and I hope you’ve checked the Unite 2 Fight Paralysis website at www.unite2fightparalysis.org), I wanted to share some additional information about other research that is going on right here in New Jersey.

If you have never met or listened to Dr. Wise Young and Dr. Patricia Morton at the WM Keck Center, SCI Project at Rutgers in Piscataway, I would suggest you try to attend their upcoming Open House this Friday, November 4. You can tour the lab and listen to Dr. Young’s updates on the latest news from the China SCINet Trials and his plans for U.S. trials in 2012. Go to   http://keck.rutgers.edu/calendar/calendar.html for the details on the event. Dr. Young also makes himself available after every presentation to answer your questions one on one. He is such a caring, compassionate person and a brilliant scientist – we are SO fortunate to have him right here in New Jersey! Take advantage of hearing him speak and take time to meet him and speak with him. I know you’ll be glad you did!

If I can answer any questions for you about the Open House, please ask!

Cynthia

Read Full Post »

OK, I know it’s been a while – a very long while – since I’ve posted. No excuses, I know. Time to get back to business!

All of our Push to Walk trainers and I attended two wonderful, educational and informative days at the Working 2 Walk Conference in Rockville, Maryland. Many, many thanks to Marilyn Smith and her crew for organizing such a great forum for the SCI community.

They will be posting videos of all the presentations on their site as they are able to edit and upload them, so check their site on a regular basis to watch and learn what the scientists and researchers spoke about: www.unite2fightparalysis.org.

I personally found the workshop very enlightening and promising. There is so much going on in the world for SCI research, that I remain hopeful that it’s not a matter of if, but a matter of time. I am frustrated, like so many others who expressed their opinions, in the amount of time it takes to get clinical studies approved, but hopefully the SCI community can band together and work in an organized manner to help push things through the process in a  more timely fashion.

If you are interested in getting more involved in this aspect of the SCI world, I suggest you contact Marilyn Smith at Unite 2Fight Paralysis and let her know you’d like to join the cause. I’m sure she would appreciate hearing from you!

Cynthia

Read Full Post »

« Newer Posts - Older Posts »