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Posts Tagged ‘Unite 2 Fight Paralysis’

It would seem only right that the Push to Walk staff and I spent the last few days of September at the Working 2 Walk Science and Advocacy Symposium in Boston this past weekend.

Marilyn Smith and her entire team at Unite 2 Fight Paralysis (U2FP) hosted an amazing event that brought together researchers, scientists, advocates, related professionals and people with SCI and their families to hear the latest information as related to finding a cure for SCI and how to advocate as a community.

While much of the science was over my head, I am excited and energized about all that is going on in the US and abroad to find a cure for SCI. Admittedly, I am also frustrated at just HOW LONG this stuff takes! But it is exciting to learn about new research and hear updates from those who have presented at previous conferences.

Travis Roy’s opening remarks on the second day of the symposium were open and honest, revealing personal details about his challenges from the moment he opens his eyes in the morning. While mostly familiar to me, I hope his comments opened up some other eyes and brought just a small dose of reality to those working for a cure in their labs and not necessarily knowledgeable about the intricate difficulties a person with SCI faces each and every day.

U2FP does an awesome job of not only pulling together this conference, but also spreading the information afterwards. While some or most might not be available yet, stay tuned to the following links for posted details:

Unite 2 Fight Paralysis

Care Cure Forums for Kate’s incredible live blogging

(I see Care Cure has recently updated their forums, so please be patient if you find any bugs or problems. I know Wise Young and other moderators are working hard on needed fixes. They are scientists and advocates, not IT experts. It might some time to iron out the new system.)

Travis Roy Foundation

Here’s to hoping research continues for SCI and even more people and funds are allocated to work on this area. I am thankful there are dedicated scientists and teams doing a lot of exciting work, and pray every day that a cure will be found………we must ALL work towards this goal, support the research and ADVOCATE for ourselves!

Cynthia

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Happy Friday Everyone!

Riding my exercise bike this morning, I was watching the news as usual and was so happy to see a story about a flash mob that gathered in a store parking lot to collect money for a family in need. It just spoke volumes about how generous people really are, and how collectively, we can all make a difference to others. Reminds me of the old favorite “It’s a Wonderful Life,” which I watched for the very first time just last year! I loved that story – who doesn’t?

So along those lines of spreading the Christmas spirit and being thankful for all those who have helped me, my family and Push to Walk, I would now like to mention other people and organizations who are near and dear to my heart and share how thankful I am to them:

Bob Parker and NewBridge (www.newbridge.org), a local non profit which helps bring balance to people’s lives through counseling, housing and education for children, adults and seniors. Besides having my own ties to them for many, many years, their nurse and social worker helped my Mother and provided some much needed services when she was living alone.

Unite 2 Fight Paralysis, a new favorite since being immersed in the world of spinal cord injury, is a wonderful group of people dedicated to uniting and empowering the international spinal cord injury community to cure paralysis through advocacy, education and support for research. Marilyn Smith and her team have worked tirelessly to make progress in all of these areas and continues to provide a voice for all of us in search of a cure. Thank you! (www.u2fp.org)

Another favorite local non profit is the Community Soup Kitchen (www.cskmorristown.org) who provides nutritious meals in a warm, safe, and caring environment, free of charge, no questions asked along with assistance in accessing community resources, services, and educational programs. Carol Kennedy has been involved with this organization for many years and they meet an ever increasing need for these types of services.

Some SCI favorite resources: The Kessler Foundation, The Christopher and Dana Reeve Foundation, SCI Sucks, Spinalpedia and  FacingDisability.com. Check out these links and take advantage of the information and services they provide. Perhaps they will become some of your favorites in the future!

Enjoy the weekend, and I hope you look forward to the holidays with as much love and joy in your hearts as I do!

Cynthia

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Thanks to the entire group at Unite 2 Fight Paralysis headed up by Marilyn Smith and the Working 2 Walk conference that was held in Irvine, California at the beginning of November. Our Push to Walk trainer, Tommy Sutor, attended the conference and was very excited to hear about the research that is going on from many different scientists. He came back with a ton of information to share, and has been telling us what he learned. So many exciting things going on!

One of the most important areas of the conference involved advocacy  and how people with spinal cord injuries need to join together and fight for a cure. While the areas of maintaining and improving health and wellness are important (very important, in my opinion if people want to be ready for a cure), the focus seemed to be on making advocating for a cure a priority now more than ever. Several people spoke about the current efforts and what individuals can do to contribute to the cause. As with most areas of concern, banding together and working in a unified group is sure to have more positive results than working separately and independently.

Please check the following links to learn more about what went on at the Working 2 Walk conference. Sorry I couldn’t be there this year – Hurricane Sandy derailed my plans (along with many others I am sure), but I look forward to attending next year in Boston. And since it will be back on the east coast, I look forward to more staff members attending as well. Thank you, Marilyn, for your hard work!

Check these links for more info:

http://working2walk2012.wordpress.com/2012/

http://www.u2fp.org/

Cynthia

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