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Posts Tagged ‘spinal cord injury cure’

Every once in awhile, I like to get on my “soapbox” about any number of topics, but I don’t always feel I have the most interesting, worthwhile or news-worthy items to write about. If you have something you’d like to share about ANY topic of interest that would be helpful to people who follow Push to Walk, I would love to hear from you! Maybe you enjoy writing but don’t have a place that anyone would see? Perhaps you enjoy a particular activity or hobby you’d like to share? Or if you have any helpful hints or tricks you’ve found that work for you – related to disabilities or not – maybe you’d like to send them to me, and I’ll post them from my guest bloggers!

Please write to me at ctempleton@pushtowalknj.org. I’d love to review your writings and include them here.

Thanks! Cynthia

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This past Wednesday, doctors, researchers and scientists came together in Albany, New York to discuss “Progress in Spinal Cord Injury Research – The NYS Program: Past and Future.” I was not able to attend, so if anyone reading this did, I’d love to hear your thoughts and feedback. Also, if you know of a link to any information on the event, please let me know.

Many Push to Walk clients travel to our Riverdale, NJ center from all parts of New York: New York City, Brooklyn, Queens, Staten Island and the lower Hudson Valley area. For a time, we even had a client traveling all the way from Albany once every two weeks! So we are very interested in what goes on in New York, and try to stay abreast of any developments.

From what I understand, the purpose of the conference was to present current information on research and treatments, while trying to convince the NY legislators to reinstate the funding stream for research through the traffic ticket and moving violations surcharges. While 70 million dollars had been used for this purpose from 1998-2009, that ended when those funds were diverted to unrelated purposes.

We support the reinstatement of these funds and hope that the symposium and press conference were an effective way to make this happen. Congratulations to everyone involved in the effort, and please let us know if Push to Walk can help in any way.

Cynthia

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With Valentine’s Day upon us, it was fitting that the New York Spinal Cord Injury Association chose to show some love and honor two very special people: Boyd Melson and Dr. Adam Stein. At Slate in New York City, a Mardi Gras fund raiser was held last night, and according to one attendee I spoke with, it was a lot of fun!

Their guest of honor was Adam B. Stein, M.D., Chairman Dept. of Physical Medicine and Rehabilitation Hofstra North Shore-Long Island Jewish School of Medicine-The North Shore-Long Island Jewish Health System.  Dr. Stein  received the 2013 Humanitarian of the Year award in recognition of his many achievements in the field of rehabilitation medicine and unfailing support of the SCI community.

Special Guest and MVP (Most Valuable Philanthropist) Boyd “Rainmaker” Melson – professional boxer and founder of Team Fight to Walk was honored for his generous support of SCI research and the quest for a cure.

I am honored to know both of these people, and recognize how valuable their contributions to the SCI community are. Thank you for all you do!

NYCSCIA is run entirely by volunteers, ensuring that all donations go toward funding programs and services that directly benefit people with spinal cord injuries.

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For the past few years, as our schedules have wound down and our weekends are not spent on our children’s athletic events and other activities, I have found myself watching more football games than ever before. Sundays have become more relaxing, and I enjoy watching either the Jets or Giants (no boo’s please!). Even though I sometimes question how the game is played and the number of injuries sustained, I do like to watch.

Since this week is leading up to the Super Bowl, I was curious about the sports reports I hear detailing various activities for the week. So I went online to check them out: Media Day, Legends for Charity Dinner, Super Bowl Breakfast, Luncheons and a Super Saturday of Service. Wow, it almost seems like THE GAME is lost in all of the other events!

But this got me thinking about such a BIG event. When the Super Bowl comes to New Jersey – YES, NEW JERSEY, not New York one year from now in 2014, wouldn’t it be great if the focus of all these “extras” could highlight the need for care, treatment, cure and quality of life for people with spinal cord injuries and paralysis from neurological conditions like MS, brain injuries and strokes?? Wouldn’t that be SUPER cool??? Come on, people, how do we make this happen??

New Jersey is home to the Jets AND the Giants and their passionate fans; Dr. Wise Young, a prominent international researcher for SCI cure is based at Rutgers University; Kessler Institute, a Model SCI Center, in West Orange;  Kessler Foundation who focuses on employment opportunities for people with disabilities (and so much more!); The Christopher and Dana Reeve Foundation which provides comprehensive resources & funding for everything related to SCI and paralysis, and of course, yours truly – Push to Walk!

Together, I think we should all get on board and petition the NFL to consider SCI and paralysis a major focal point for the 2014 Super Bowl. Anyone in???

Game on! Enjoy the excitement! Cynthia

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Thanks to the entire group at Unite 2 Fight Paralysis headed up by Marilyn Smith and the Working 2 Walk conference that was held in Irvine, California at the beginning of November. Our Push to Walk trainer, Tommy Sutor, attended the conference and was very excited to hear about the research that is going on from many different scientists. He came back with a ton of information to share, and has been telling us what he learned. So many exciting things going on!

One of the most important areas of the conference involved advocacy  and how people with spinal cord injuries need to join together and fight for a cure. While the areas of maintaining and improving health and wellness are important (very important, in my opinion if people want to be ready for a cure), the focus seemed to be on making advocating for a cure a priority now more than ever. Several people spoke about the current efforts and what individuals can do to contribute to the cause. As with most areas of concern, banding together and working in a unified group is sure to have more positive results than working separately and independently.

Please check the following links to learn more about what went on at the Working 2 Walk conference. Sorry I couldn’t be there this year – Hurricane Sandy derailed my plans (along with many others I am sure), but I look forward to attending next year in Boston. And since it will be back on the east coast, I look forward to more staff members attending as well. Thank you, Marilyn, for your hard work!

Check these links for more info:

http://working2walk2012.wordpress.com/2012/

http://www.u2fp.org/

Cynthia

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Hello Everyone!

I am very excited that our Push to Walk trainer Tommy, my daughter Arianne (newly graduated as a DPT – Doctorate of Physical Therapy) and I will be attending this year’s Working 2 Walk conference in Irvine, CA. Marilyn Smith and the Unite 2 Fight Paralysis team does an awesome job of bringing together the best and brightest in the field of spinal cord injury research to update consumers and professionals on the current status of progress being made.

I attended the two previous conferences in Phoenix and Maryland, and am very happy to be going again this year. In addition to hearing speakers that include Jerry Silver, Frank Reynolds and Dr. Oswald Steward, I love connecting with friends around the country and meeting new friends, all of whom are involved in the SCI community.

The conference will conclude with a tour of the Reeve-Irvine Research Center, which is sure to be exciting and informative! Tommy is especially interested in all things related to research and SCI, so this is sure to be a highlight of the trip.

Check out the website for the conference (www.working2walk.org), and follow the Care Cure posts that usually keep track of all the conference happenings (http://sci.rutgers.edu). I’ll give you a summary when we return.

Cynthia

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Governor Chris Christie has proclaimed September 2012 to be Spinal Cord Injury Awareness Month in New Jersey. This is very exciting! After more than 18 months of work, writing letters, making phone calls and sending e-mails, an Official Proclamation has been signed and received by Push to Walk. With a group of supporters that include Kessler Institute, The Christopher and Dana Reeve Foundation, Dr. Wise Young and Dr. Patricia Morton of Rutgers, United Spinal Association, National Spinal Cord Injury Association and Disability Rights New Jersey, the Governor’s Office responded positively to our request.  It is now official, and will hopefully be renewed each year.

The official proclamation states that “through public awareness and education, the State of New Jersey seeks to minimize the devastating effects of spinal cord injuries among our residents,” and that “increased focus and investments in treatments, research, advocacy and awareness are key factors in improving outcomes and the quality of life for individuals living with spinal cord injuries.” It is now up to us, collectively, to determine how to maximize the positive impact this could have on the SCI population of our state, and use this recognition for the benefit of all. Please help us spread the word to your friends and family, on Facebook, e-mails blasts, etc.

We have a link to the Proclamation on our website homepage – please check it out: http://www.pushtowalknj.org.

Thank you to all those individuals and organizations who helped us get this recognition, and to Governor Christie for his support.

Now let’s do something to celebrate! Any ideas???

Cynthia

 

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